Living with Neuroendocrine Cancer – Home Page


Check out my patient story video by clicking on this picture

Check out my Podcast (click and press play)

Welcome to the blog site of Ronny Allan who was diagnosed with incurable Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, symptoms of iron deficiency and facial flushing (Carcinoid Syndrome). In this blog, Ronny discusses various aspects of his cancer, his treatment, and his daily life in terms of changes he had to make.

Factual, educational and the occasional pinch of humour, Ronny aims to put a positive spin on his life. He also uses the blog to spread awareness of this unusual, less common and complex disease including any related issues. He is passionate about moving Neuroendocrine Cancer into mainstream knowledge circles. He also occasionally blogs about other cancers in the news and related general cancer issues.

In 2016, Ronny won an award in the annual WEGO Health Activist category of “Best in Show: Community”.  This is a significant milestone for the Neuroendocrine Cancer community which comprises those who support Ronny on this page and also on Twitter, Facebook, Pinterest, Instagram and Google Plus.

Ronny’s most read articles can be found here or by browsing the site: Most Popular Posts (CLICK)

He supplements his WordPress blog activity by running a Neuroendocrine Cancer Facebook Cancer Community page. If you want to see more posts, please like this Facebook page.

Copyright © 2017 · Ronny Allan (NET Cancer Blog) – some images may also be subject to copyright

Feedback from supporters:


 2016 Best in Show: Community winner.  “Internationally known Neuroendocrine Cancer Patient Leader – Ronny Allan is certainly making his mark on the online health community”


Carcinoid Cancer Foundation wrote: “Blogs by Ronny Allan are a must read!” ….and: “Ronny Allan is one of our favorite bloggers — we highly recommend his blogs. He’s a fantastic advocate for neuroendocrine cancer and is definitely raising awareness of these rare diseases” ….and: “We look forward to reading all of your posts!”


Macmillan wrote: “Brilliant Blogger”

Arisen Strength wrote: “Ronny Allan is dedicated to making a difference! And that makes him MORE than the challenges he faces!”


CKN wrote: “You are a wonderful voice in cancer advocacy”


Kanga Health wrote: “Proud to have worked on this project with some marvellous people including Ronny Allan (NET Cancer Blog)”

Pheochromocytoma Support Foundation wrote “Ronny Allan is a wonderful advocate in the world of NET Cancer. We especially like him here, because he is so positive”

Northwoods NETS (Minnesota Carcinoid & Neuroendocrine Cancer Support Group) wrote: “He’s published a number of fantastic articles that take very technical topics and make them completely accessible for patients and their families to understand”

Dr Eric Liu (Internationally Recognized Neuroendocrine Tumor Surgeon) wrote: Great blog Ronny. Thank you for sharingandgreat job with the blogs. Keep up the good work

Les tweeted: “Ronny Allan is simply inspirational”

Liz wrote: Your posts and words are so very very important for helping people understand more.  In terms of awareness, your methods are 100 times more potent than a zebra picture

Billy wrote: “I am always happy when I get a notification (one of very few that I allow) that you have posted something new to your blog. I appreciate your honesty and your approach towards the subjects you address. I can always count on knowing that you give a fair and balanced perspective. Thanks for that

Teresa wrote: Thank you so much. We have so many “blogs” websites, etc., that seem to cause me more anxiety than help. It is so refreshing to read your blogs. I always learn something new”

Su En wrote: “I am so happy that I have found you Ronny. You are expressing exactly how I feel and I no longer feel alone. Thank you so much for sharing your knowledge and experience. Looking forward to following your NET Cancer Blog

Marilyn wrote: “Wonderfully written, poignant and, most importantly, so encouraging! Thank you!”

Dave wrote: “I’m very happy to have found your blog. You do a great job of educating without scaring”

Genevieve wrote: “It’s a very comforting thing to me! Please don’t ever stop!”

Helen wrote: “Ronny Allan’s blog is the greatest. A mine of information


Featured Blog Posts:

Ronny’s blogs have been featured by various organisations:

Sorry, I’m not in service Guest Blog post by Macmillan.  Also featured by Cancer Knowledge Network

Go on, climb that hill!Guest Blog post by Macmillan.

Intelligent patients – just what the doctor didn’t order – Guest Blog post by Carcinoid Cancer Foundation

Colonoscopy Comedy – featured by Macmillan

A deadly cloud with a silver lining for Cancer – featured by Macmillan

Stable is my new normal – featured by Macmillan

Living with an incurable cancer – does mind over matter help? – featured by Macmillan

Keep your light burning – featured by Anti Cancer Club

The Invisible NET Patient Population – featured by NET Patient Foundation

The following organisations have advertised Ronny’s entire blog by linking to it from their websites:

Carcinoid Cancer Foundation

Canadian Cancer Survivor Network

Cancer Knowledge Network

The Pheochromocytoma Support Foundation

The Pheo Para Project

Big Apple NETs

Northwoods NETS (Minnesota Carcinoid & Neuroendocrine Cancer Support Group)

Le Sourire de Sabrina


Please note all information provided in this blog is Ronny’s own views and opinions and is therefore strictly for educational or discussion purposes. Moreover, it does not constitute professional medical advice, diagnosis, treatment, or care. Furthermore, it does not necessarily reflect the views or opinions of his medical team, Cancer Research UK, Macmillan, Carcinoid Cancer Foundation, NET Patient Foundation, or any other organisation or person with whom he may be directly or indirectly associated. Full Disclaimerclick here

Please ‘Like’ Ronny’s NET Cancer Blog Facebook page  (click here and ‘Like’)

Connect with Ronny on Twitter (click and then follow)

Connect with NET Cancer Blog on Twitter (click and then follow)

Connect with Ronny on Pinterest (click and then follow)

Connect with Ronny on Instagram (click and then follow)

Read and subscribe to Ronny Allan’s twitter Newsletter (click and then subscribe)

Check out my Podcast (click and press play)

Background to my diagnosis and treatment – click here

Disclaimer – click here

Copyright © 2017 · Ronny Allan (NET Cancer Blog)


Please note this site is totally non-profit, is not aligned to a particular non-profit organisation.  Whilst efforts have been made to update, any reference to fund-raising found will be related a now expired and closed event.  Additionally, any referencing of organisations which have a fundraising function is for their non-fundraising technical content and is not in any way a suggestion you should donate to the organisation being referenced.  No buying or selling allowed. All posts are moderated.



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