Home » Awareness » Diagnosis – I’m no longer in control

Diagnosis – I’m no longer in control


35838_406050631020_561862_n

Barbados June 2010 ……. happy time but I didn’t know I was just about to be diagnosed with incurable Cancer.

Diagnosis‘.  The dreaded moment when you’re looking at an Oncologist and waiting to be given some news. I’d been to a routine annual Asthma clinic, referred to my GP, referred to a specialist, had a bunch of tests and now referred to an Oncologist.

Rewind 2 months to May 2010.  I was happily working, getting stuff done, making things work. I had sufficient autonomy and freedom of manoeuvre.  I felt in control.  I’m happy as a pig in the proverbial!  My annual Asthma clinic comes along and it’s an opportunity to work at home for the day….yahoo – no commuting! “Hi Ronny” – “Hi Liz”. Blah Blah Blah. However, glad Liz was taking it seriously – I just wanted to get back to my laptop, things to do…… After the usual tests and checks, we commenced the AOB (any other business) – “I think I’m a bit lighter than I thought I was”….”Did you mean to lose the weight?”…..”no”.  Just to be sure, Liz gave me a blood test form.  Had I known at the time that this was probably the most important document I might have ever held in my hand, I would have driven straight down to Bournemouth Hospital and had the test done. However, this form sat in my in-tray for around three weeks…… I was too busy on my laptop, things to do…….. To cut a long story short, my blood results were not right and the discrepancy needed further investigation. One thing led to another and on 26 July 2010 I met with an Oncologist.  He dispensed the news that I had incurable Cancer and without treatment I would eventually die and perhaps pretty soon.

I no longer felt in control

But thank you Liz – I often think what might have transpired without that blood test.

Listen to me explaining my diagnosis here: CLICK for the video.

Thanks for reading

Ronny

Hey, I’m also active on Facebook.  Like my page for even more news.

Disclaimer

My Diagnosis and Treatment History

Most Popular Posts

Sign up for my twitter newsletter

Check out my Podcast (click and press play)

Remember ….. in the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life!

community_titled_transparent_2013-10-22


14 Comments

  1. Shelli Friend says:

    Thank you for your story. I was told by my Family Doc I have Carcinoid Syndrome. Oncologist on Feb 8. I am freaking out so bad. I am only 54.

    Liked by 1 person

  2. […] treatment.  That said, some cancers can be as invisible after the treatment as they were before diagnosis.  I have an incurable Neuroendocrine Cancer but I looked well at diagnosis and I look well today. […]

    Like

  3. […] flushing but totally ignored it (well I am a man!).  However, it ended up being instrumental in my diagnosis albeit some luck was also involved in getting to that point.  However, I was very lucky despite my […]

    Like

  4. Ellie Cusack says:

    Hi Ronny, fantastic blog! Thanks so much for sharing your story!

    Liked by 1 person

  5. Scott Franklin says:

    Recently diagnosed w stage 4 net. Grade 2 tumor on my left kidney. Lympnodes nearby enlarged and just had dotatoc scan that showed one .8cm lesion in liver and 1cm lesion on left hip. I have no pain currently but plan is to have surgery and remove tumor and kidney along w lymph nodes and spot on kidney. Hard to believe it’s happening. I’m 52

    Liked by 1 person

    • ronnyallan says:

      Sorry to hear of your diagnosis Scott? Can I ask if they are saying the primary tumour is the kidney? How do they know the tumour is grade 2? Are you seeing a NET Cancer specialist? Where are you located?

      NETs are treatable once they know where they are and tend to be slow growing. Hopefully this will offer you fairly normal life aftet treatment – you will be under surveillance for the forseeable as they can be a bit sneaky

      Like

      • Scott Franklin says:

        I had a biopsy at UCSF which determined it was a NET and that it was grade 2 because of the 8% on KI-67 report. I am seeing a specialist at ucsf but feel a little bit in between as she is in the GI group but my tumor is in my kidney which is extremely rare. I have no symptoms now which makes it so odd. I feel great. Thanks for the feedback

        Liked by 1 person

      • ronnyallan says:

        Liver Biopsy? Keep feeling great!

        Like

      • Scott Franklin says:

        Biopsy of the enlarged lymph nodes around the kidney. They are convinced that the kidney tumor is the primary NET

        Liked by 1 person

      • ronnyallan says:

        OK that is rare! Good luck with your treatment. Keep in touch and hope you will continue to follow my blog? I also have a Facebook link to the blog and I post more stuff than on here: https://www.facebook.com/pages/NET-Cancer-Blog/476922399112723

        You will need to ‘Like’ the page to see the posts.

        Thanks again for contributing and let me know how things go?

        Like

  6. […] you want to read (and hear) more detail about my diagnosis, check out these blog posts: Diagnosis – I’m no longer in control and Did you mean to […]

    Like

  7. […] I’ve always had a ‘sweet tooth’ and the softer the sweet the better – toffee, marshmallows, chocolate, jelly babies, jelly beans, fruit pastilles, fudge and macaroon are all on my list of favourites.   In terms of desserts, I love those too – ice cream, cheese cake, meringue, cake, sponge with custard, the list is endless. And of course a hot drink isn’t complete without a biscuit (or three….). Don’t get me wrong, I’m not stuffing my face with sweet stuff 24/7, however I do need my sugar ‘fix’ now and then.  I’m not a large person, I’m small ‘framed’ and although I was starting to look a bit ‘chubby’ early 2010, my Neuroendocrine Cancer diagnosis took care of that (Diagnosis – I’m no longer in control). […]

    Like

  8. […] Just lately I seem to have caught the learning bug once again and I’m now considering starting a home learning course on human biology.  However, this time it’s personal as I want to cement the general medical knowledge I’ve gained in the past 4 years since being diagnosed with Neuroendocrine Cancer (Carcinoid) – read about this here Diagnosis – I’m no longer in control […]

    Like

Thanks for the comment, make sure you have ticked the box to receive notifications of responses

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 10,024 other followers

Follow Ronny Allan – Living with Neuroendocrine Cancer on WordPress.com

Blog Stats

  • 393,929 hits

Recent Posts

%d bloggers like this: