One of the most interesting statistics in my blog app is the total number of views recorded each day. It even breaks the total down into which posts were most viewed and which countries the viewers were from (but please note it does not identify the name or any other details of viewers). I’m always very pleased to have readers from overseas locations – I hope they enjoy reading my blog and find it useful. To date, these include readers from USA, Australia, Canada, New Zealand, Barbados, Belize, France, Germany, Switzerland, Belgium, Netherlands, Luxembourg, Portugal, Austria, UAE, Bahrain, Philippines, Nigeria, Kenya, Croatia, Ireland, Sweden, Italy, Japan, Czech Republic.
Neuroendocrine Cancer is not unique to UK, it’s an International disease. The incidence is fairly similar across the globe from the statistics available – anything between 2 – 5 cases per 100,000 of the population. Those low incidence rates make it quite rare and some types of Neuroendocrine Cancer are considered very rare. If you research, you will find Neuroendocrine Support groups in most countries. I like to link in with any grouping and I have several on Facebook and Twitter from overseas in addition to UK based organisations such as PLANETS http://www.planetscharity.org and NET Patient Foundation http://www.netpatientfoundation.org
There are also international medical groupings who collaborate with each other and with industry to discover new treatments and suggest new standards for care. In the UK (and Ireland) there is the UK and Ireland Neuroendocrine Tumour Society (UKI NETS and they will liaise closely with their counterparts in the European Neuroendocrine Tumor Society (ENETS). I find the technical documentation from these two organisations quite useful.
Our friends in USA have the biggest organisations and I very much like the Carcinoid Cancer Foundation http://www.carcinoid.org/ which I use regularly (Carcinoid is the most common type of Neuroendocrine Cancer). They just shared a very good video today on Twitter which I’m embedding here, I hope you can find the time to watch it? http://www.youtube.com/watch?v=9U6q78a1xaQ
At the support level, the International Neuroendocrine Cancer Alliance is the global voice in support of neuroendocrine cancer patients http://netcancerday.org/ I mentioned above that there are support groups from many countries – you can see a list here http://netcancerday.org/about/world-net-community-directory. Every year on NET Cancer day – 10 Nov, their voice gets louder in support of Neuroendocrine patients. Make a note in your calendar – I’ll be having a coffee and cake morning at home and I might even invite some of you ……. 🙂