When Tony Blair swept to power in 1997, he said: “Ask me my three main priorities for government and I tell you education, education, and education”. His approach of repeated word emphasis has been copied and recycled by many others replacing the words with something to suit their own message. I’m now guilty of similar plagiarism!
NET Cancer is rare and as a consequence has a small community of sufferers and specialists. It does not get the same levels of publicity, funding and research that the bigger patient population and more common cancers receive. It therefore needs ‘team work’ to send a bigger and more powerful awareness message. Thus why the World NET Community formed in Berlin in March 2010. This is a group of NET cancer patient organisations from countries as far-flung as North America, Australia/Far East and Europe. Their common aim is to raise awareness of NET cancers. Efforts are focussed around World NET Cancer Awareness Day, which is held on 10th November. Check out this link for more info: http://www.netcancerday.org
One of the key aims of my blog is to spread awareness of NET Cancer and I’m very pleased to be part of the ‘worldwide team’ doing my bit to help. I started blogging in Apr this year mainly to support a sponsored walk but it has turned into something more permanent. I start to twitch if I haven’t blogged for more than a week 🙂 I’m now fast approaching my first 10,000 hits which is beyond all my expectations. My blog statistics package also lets me know my posts have been read in 56 countries indicating NET Cancer is truly an international disease. Check out the long list below to see how your country is doing!
I’m also helping to spread awareness through my associations with PLANETS Charity: http://www.planetscharity.org and NET Patient Foundation: http://www.netpatientfoundation.org In fact, I’ll be representing the latter at the NET Patient Foundation event on Tuesday 4th November in the UK Parliament. This event aims to increase awareness amongst parliamentarians about NET cancers and the challenges to timely diagnoses – in short we are taking our fight for greater awareness directly to the heart of the UK government!
I’m also a ‘tweeter’ which is such a fantastic tool for spreading awareness if used properly. I run my own personal site and also administer the PLANETS Charity account. If you want to follow both of these accounts please link here:
Please also follow my colleagues in NET Patient Foundation: https://twitter.com/netpatientfound
If you want to help spread awareness of Neuroendocrine Cancer, please follow my blog and share across your own social media systems. If you want to receive an email when a new post is published, click on the follow button (this is a system generated message and your email will not be used by me for any other purpose). In addition to WordPress (the blog tool), I also post on Facebook, Twitter, Google+ and StumbleUpon.
Finally, please look at the list of blog hits by country:
|United Arab Emirates||43|
|Republic of Korea||2|
|Isle of Man||1|
I was a spectator at the Bournemouth marathon on Sunday 5 Oct 2014. I was there to shout for my old army friend, Steve Davis, who was running 26.2 miles for PLANETS Charity. When Steve found out I was living with Neuroendocrine Cancer, he immediately volunteered his services to help raise funds. Steve is a runner but when you are ’50 something’, running a marathon is no easy feat – not easy on your feet either 🙂
I had seen excerpts of marathons on television but this was my first time as a spectator at a live event. One thing that struck me was the sheer number of people who were running for good causes. The usual big names were there (Cancer Research, Macmillan, etc) but there were dozens of smaller charities also represented including PLANETS ( http://www.planetscharity.org ) Sure, there were many ‘professionals’ and the ‘fitness types’ who were there because they run marathons as a sport/pastime – but they were vastly outnumbered by people who were running to make a statement and to raise money for their chosen charities.
The ‘statement makers’ were big, small, tall, short, long hair, short hair and some with no hair. To me some of them did not look like they would be able to run 26.2 miles. However, their presence there meant they had made the commitment. If you want to witness the meaning of pride, determination, relief and happiness all bundled into one, simply go and look at the faces of people as they cross the finish point of a marathon. If you also want to be moved, go to a live marathon. I saw a blind man running who was attached to a ‘guide’ and I saw ladies who had clearly just undergone (or were undergoing) chemotherapy. Many people had the names of family and friends emblazoned on their running tops and the one which made me frantically ‘blink’ was a lady who had clearly lost a child through some illness.
I think all cancer patients and those who have been touched by this terrible disease will join me in thanking everybody who steps up and commits their time and effort to make money for charities all over the world. It is really very much appreciated.
I found the whole day quite humbling and my emotions were certainly tweaked.
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