The rise of the NET has allowed people to use ‘social technology’ to help shape the world’s events and culture. Additionally, the NET has increased the speed of how relationships develop, the way information is shared and (whether you like it or not) how influence can be leveraged for gain. Facebook has taught us new ways to communicate and collaborate through features like feeds, profiles and groups. At the same time, smartphones and tablets provide mobile and instantaneous access to information from any location. Whether you like it or not, we are witnessing the power of social media and its effect on society.
However, the ‘NET’ can also provide ‘misinformation’. Unfortunately ‘misinformation’ also includes ‘alleged’ cures for various ailments including cancer. I think we’ve all been there, we check twitter, Facebook, Pinterest etc and we find the ubiquitous miracle cures for every illness under the sun. Easy to find, easy to read and worryingly, easy to share. Surely these cures must be true, after all…..it’s on the ‘NET’.
When I was diagnosed with metastatic Neuroendocrine Tumours (aka ‘NET’ Cancer) in 2010, I took to the ‘NET’ to find out about my ‘NETs’ 🙂 However, I soon found out the NET is potentially more dangerous than my NET (Cancer). Put a foot in the wrong place and ‘boom’. Not only can you get easily lost but you end up with dubious information which looks pretty credible. Moreover, in some cases this can be unnecessarily stressful and upsetting for some. Fortunately I had worked with information technology for years and combined with my sceptical but inquisitive nature, I was able to overcome this problem. It resulted in me writing a blog ‘Google is not a synonym for research.
The champion ‘myth busters’ are the world-renowned Cancer Research UK and I always go there when I see something in the media which sounds too good to be true. There is an excellent blog piece written by Cancer Research UK who debunked various cancer myths that seem to continuously patrol the NET, including on patient forums. Take a look at ‘Don’t believe the hype – 10 cancer myths debunked’. Whilst you’re there, take a look at their Science blog as they always follow up the most recent headline grabbing newspaper articles claiming to have found the cure for cancer (again). Cancer Research UK will always provide balanced commentary on these claims.
Hope is great, false hope is not.
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