Home » Awareness » NETwork with Ronny © – Newsletter December 2016

NETwork with Ronny © – Newsletter December 2016

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Hi NETworkers!

Welcome to my second ‘community’ newsletter, the monthly summary of NET news in Dec 2016, views and ICYMI (in case you missed it!).

December was a particularly special month.  For the previous 3 months, I had been busily working behind the scenes and on my various social media presences to put on a good show for the 2016 WEGO Health Activist Awards.  This paid off and I won the Best in Show ‘Community’ category in addition to being shortlisted as one of 5 finalists in the blog category.  The community award was special because it means we all won the award as a part of this ‘Community’.  I’ve picked up a whole new bunch of friends outside the NET world bringing much-needed exposure to NET Cancer. I had a quiet week resting before I resumed normal activity and then a sprint finish at the end of the month took me over the magic 10,000 blog hits figure (and even more on Facebook).  Stick with me because I really need your help and support and anyone else you know who can assist.  The WEGO awards brought a significant increase in twitter followers.

Blogging

A quiet month in terms of numbers of blogs. Due to the vagaries of Facebook inner workings, some of these may not have even shown on your timeline.  So, ICYMI …….here’s a summary with links:

  • My Nov Newsletter!
  • A blog all about Carcinoid Crisis – potentially one of the most important pieces of information you need to know.  Read here.
  • My award announcement!
  • First in a series of ‘spotlight on ……’ posts – this one on Pheochromocytomas and Paragangliomas.  Read here.
  • I shared an inspiration message with you – one that I received from an old friend. Read ‘Keep your light burning’ which had a great response.
  • Confused about the difference between Lanreotide and Octreotide?  This blog will help – it got a really good response and you can read it here.  I also received lots of questions about the individual drugs which was great and shows the importance of this subject to patients out there.

Other News in Dec

New Audiences for NET Cancer.  From Day 1, I said it was my aim to find new audiences for NETS rather than just share stuff within our own community.  Two new openings in Dec to report:

  • The exposure during the build up to the 2016 WEGO Health Activist Awards where I made the final in two categories continued into Dec culminating in the award win (you can listen to the announcement live here).  I also featured in a radio show just before the announcement and you can listen to it here (start at 40.30).
  • I’m ‘extremely’ active on twitter and I find a lot of my research stuff there.  I also use it to support other conditions and it’s mostly returned (i.e. others help with NET awareness).   There is so much on twitter that I could swamp the community Facebook site so I started a twitter newsletter via an app called Nuzzel which seeks out stuff I normally like.  You can sign up for this newsletter here as I wont be posting it every day.  Click this link and sign up if you think this is something  you’d be interested in receiving.

Blog Milestone.  My blog tipped over 200,000 views in Dec and it’s already accelerating toward a quarter of a million.  Thanks – keep sharing!

Facebook Milestone.  My Facebook page was 2 years old in Dec 🙂  Please recommend this page to anyone you think would be interested.

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Invite or recommend my page please – let’s grow awareness!

Figures

Where did December Blog views come from – Top 10 countries (Dominican Republic seems to be a new source of interest):

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For interest the 10 Ten Facebook followers by Country.

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Thanks for your great support in December.  Looking forward to serving you in 2017!

Ronny

Hey Guys, I’m also active on Facebook.  Like my page for even more news.

Disclaimer

My Diagnosis and Treatment History

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3 Comments

  1. jean borden says:

    Keep up the great work Ronnie, exposure is vital for Neuroendocrine Cancer publicity! Thank you for all your hard work!

    Liked by 1 person

  2. Keep up the good work Ronny, and loving the daily updates👍

    Liked by 1 person

  3. Gaynor Miles says:

    Ronny you are an amazing person mate, just keep on writing 😘😘

    Liked by 1 person

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